School Age (6-13) Resources

DSAWM School Age programs are designed to supplement educational services. Areas of focus include motor skill development, socialization, and building a foundation for a healthy lifestyle. Resources relevant to this stage of development include education intervention and advocacy, therapies, social engagement, respite, medical support, and financial assistance.

DSAWM Programs and Services for Early Stages

Buddy Up Tennis

Buddy Up Tennis teaches children and teens with Down syndrome the game of tennis while supporting healthy activity and motor function. Athletes aged 5 and older work with professional coaches and one-on-one Buddies. To learn more about Buddy Up Tennis visit the Buddy Up website. Visit the DSAWM calendar to view our current Buddy Up schedule.

Friends Just Like Me

Each spring, families experiencing Down syndrome are invited to Grand Rapids Children’s Museum for a private event to meet other families on the same journey. Friends Just Like Me is held in May.

iCan Bike Camp

Every other summer, DSAWM hosts a week-long iCan Bike Camp where children with disabilities ages 8 and older can learn to ride a typical two-wheeled bicycle using proven, research-based methods. The next iCan Bike Camp will be held in 2022.

Member Financial Assistance

DSAWM’s Member Financial Assistance Fund is designed to provide financial support to families raising individuals with Down syndrome who need help with certain Down syndrome-related expenses including adoption, education, therapy, adaptive devices, respite, and hospital stays.

Playgroups

Playgroups are a fun, social option to support development during early elementary education. Playgroup focus varies and includes speech, fine motor, gross motor, communication, and more to meet the various needs of our children. Visit the DSAWM calendar for current playgroup information.

Water Ski Clinic

DSAWM hosts an Adaptive Water Ski Clinic in partnership with Kentwood Parks and Recreation every summer that focuses on sitting and standing skiing. The clinic is held on Reeds Lake every July.

Weekly Update Newsletter

The Weekly Update newsletter is emailed every Thursday and shares upcoming programs and services from DSAWM and our community partners. For new parents, it is an easy way to get connected and learn about the opportunities available to you and your family.

Access! GR

Through a partnership with ACCESS GR, DSAWM can connect members with the rich arts & cultural scene in West Michigan. Free tickets are available in a limited supply for both ongoing venues and special event venues. Accommodations can be made to make sure the arts are accessible to everyone.

Holiday Party

Every December, DSAWM families gather in Grand Rapids and Kalamazoo to visit with Santa and reconnect with friends. The Grand Rapids Holiday Party is a member-only event and is held at the Grand Rapids Public Museum.

Member Picnic

Each summer, DSAWM families gather at Tunnel Park in Holland for a day of friends, food, and fun in the sun. The Member Picnic is a member only event and is held in July.

Rock Your Socks Dance

Rock your socks off at our annual Rock Your Socks Dance in honor of World Down Syndrome Day (3/21). The event is open to anyone interested in celebrating Down syndrome.

Step Up for Down Syndrome

Step Up For Down Syndrome is the largest Down syndrome awareness event in Michigan and DSAWM’s biggest fundraiser. Families, friends, and the public are invited to this annual celebration and walk held each September where we come together to support our loved ones with Down syndrome.

Community Supports

Resources listed are not necessarily endorsed by DSAWM, but are a list of options that are available. If you know of additional West Michigan resources, please let us know at info@dsawm.org.

Education

IEP Support, Inclusion, & Advocacy
Questions or concerns about your child’s education? Michigan Alliance for Families is the leading statewide resource to connect families of children with disabilities to resources to help improve their children’s education. The organization and its parent mentors are available year-round to help facilitate parent involvement as a means of improving educational services and outcomes for students with disabilities. Peruse their online A-Z special education guide or contact them at 800-552-4821.

IEP Support & Advocacy

Kent ISD collaborated with the Parent Advisors for Special Education (PASE) to develop an informational handbook to make the IEP process more manageable and user friendly for parents.

Down Syndrome: Guidelines for Inclusive Education was created by NDSS and Down Syndrome Education International with the aim to improve the development and educational outcomes for individuals with Down syndrome from birth to adult life by providing educators, therapists, early interventionists, parents and school districts with a guide to evidence-based practices.

Many school districts have parent advisory committees (PACs) that represent and advocate for students who receive special education services. Contact information for PACs in West Michigan can be found below.
Allegan AESA / Barry ISD / Ionia County ISD / Kalamazoo RESA / Kent ISD / Mecosta-Osceola ISD / Montcalm Area ISD / Muskegon Area ISD / Ottawa Area ISD / Van Buren ISD / West Shore (Oceana) ESD

Need an educational advocate’s expertise, advice, or mediation support? Contact one of these organizations or individuals:

ACCESS Education serving Ann Arbor, Lansing, and Plainwell

The Arc of Michigan search for your local Arc office to identify your regional advocate

Council of Parent Attorneys and Advocates search COPAA’s directory by location and area of practice to find an advocate

Dispute Resolution Center of West Michigan free mediation services in Ionia, Kent, Lake, Mecosta, Montcalm, Newaygo, and Osceola counties

Michigan Alliance for Families search for your regional Parent Mentor to contact and learn about your options

Wrightslaw Yellow Pages for Kids maintains an extensive listing of Michigan advocates,

State Law Resources & Mediation Options

Family Matters is an outreach effort from the Michigan Department of Education’s Office of Special Education to provide parents with information about special education and other resources.

Special Education Mediation Services provides mediation, facilitation, and training services for working through disagreements so that children with disabilities promptly receive the services they need to develop and succeed in school.

Michigan Department of Education: Special Education

Michigan Special Education Laws & Regulations

Federal Law Resources

IDEA (Individuals with Disabilities Education Act) is a law that makes available a free appropriate public education to eligible children with disabilities throughout the nation and ensures special education and related services to those children.

Section 504 ensures children with disabilities have equal access to education, including accommodations and modifications.

Wrightslaw is a nationally recognized source for reliable information about special education law and advocacy.

Teacher Information Packet

We also encourage parents to share our Teacher Information Packet with educators working with your children. The packet is for educators of students with Down syndrome in grades K-5 and is intended to assist each classroom teacher in (1) getting to know his or her student with Down syndrome and (2) building a comfortable and effective learning environment for every student.

The material addresses a wide range of subjects—from subject adaptation and student supports to social inclusion. A Getting to Know Me section is included for parents/caregivers and their children to complete together, as is a sample letter to distribute to parents of the other students in your child’s class.

1. Getting to Know Me
2. Educator Manual: Supporting the Student with Down Syndrome in Your Classroom
3. Sample Introduction Letter to Other Parents
4. School Accommodations and Modifications
5. Positive Steps to Social Inclusion

Providers listed below have indicated that they serve pediatric patients under 18 years of age. Please visit the Teen & Adult Resources page for a listing of providers who serve patients aged 18+.

Therapy

Behavior Therapy & Psychology
Defined

“Applied behavioral analysis (ABA) is a type of therapy that can improve social, communication, and learning skills through positive reinforcement.” – Healthline

West Michigan Providers

Anchored Family Jenison

Behavior Analysts of West Michigan Walker, Kentwood

BRAINS Grand Rapids

Comprehensive Therapy Center Grand Rapids

Developmental EnhancementHolland, Grandville, Grand Rapids

EnCourage Institute for Teaching and Learning, LLC Grand Rapids, Jenison
Family Nest ABA Therapy Rockford

Hope Network Behavioral Health Grand Rapids

Horizons Developmental Resource Center Caledonia

Mark Scheffers, M.Div. LMSW Kalamazoo

Pine Rest Christian Mental Health Services Grand Rapids

Sarah Feaster, LMSW, IMH-E Holland

The Shoreline Center, LLC Grand Haven
Feeding Therapy
Defined

“Feeding therapy, in its simplest form, is when a trained occupational or speech therapist helps teach a child how to eat or eat better.” – NAPA Center

Learn more about Feeding Therapy from the American Speech-Language-Hearing Association.

West Michigan Providers

Bronson Outpatient Rehabilitation Services Kalamazoo, Battle Creek, Paw Paw, South Haven

Family Tree Therapies Grand Rapids, Rockford

Helen DeVos Children’s Hospital Intensive Feeding Program Grand Rapids

High 5 Speech Therapy Holland, Grand Rapids

Horizons Developmental Resource Center Caledonia

Mary Free Bed Rehabilitation Hospital Pediatric Outpatient Feeding Therapy Grand Rapids

The Center for Childhood Development Jenison, Holland, Kalamazoo

Thrive Pediatric Speech & Feeding Therapy, LLC Grand Rapids
Music Therapy
Defined

“Music Therapy is the clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved music therapy program.” – American Music Therapy Association

West Michigan Providers

Edge Water Music Therapy Kalamazoo

Franciscan Life Process Center Lowell

Lakeshore Music Therapy Services Holland

West Michigan Music Therapy, LLC Grand Rapids

Western Michigan University Music Therapy Clinic Kalamazoo
Occupational Therapy/Sensory Integration
Defined

“Occupational therapists and occupational therapy assistants help people across the lifespan participate in the things they want and need to do through the therapeutic use of everyday activities (occupations).” – American Occupational Therapy Association,

“Sensory integration involves perceiving, modulating, organizing, and interpreting these sensations to optimize occupational performance and participation.” – American Occupational Therapy Association

Learn more about the relationship between Occupational Therapy, Sensory Integration, and Down syndrome at NDSS.org.

West Michigan Providers

BRAINS Grand Rapids

Bronson Outpatient Rehabilitation Services Kalamazoo, Battle Creek, Paw Paw, South Haven

Comprehensive Therapy Center Grand Rapids

Conductive Learning Center Grand Rapids

Engage Therapy Center Zeeland

Family Tree Therapies Grand Rapids, Rockford

Generation Care Grand Haven, Grand Rapids, Muskegon

Sensational Steps Therapy Grand Haven

Sensory Systems Clinic West Wayland

The Center for Childhood Development Jenison, Holland, Kalamazoo

The Shoreline Center, LLC Grand Haven

WMU Marion R. Spear Occupational Therapy Clinic Kalamazoo
Physical Therapy
Defined

“Physical therapists are movement experts who improve quality of life through prescribed exercise, hands-on care, and patient education.” – American Physical Therapy Association

Learn more about the relationship between Physical Therapy and Down syndrome at NDSS.org.

West Michigan Providers

Bronson Outpatient Rehabilitation Services Kalamazoo, Battle Creek, Paw Paw, South Haven

Comprehensive Therapy Center Grand Rapids

Conductive Learning Center Grand Rapids

Generation Care Grand Haven, Grand Rapids, Muskegon

Horizons Developmental Resource Center Caledonia

The Center for Childhood Development Jenison, Holland, Kalamazoo
Recreational Therapy
Defined

“Recreational therapy, also known as therapeutic recreation, is a systematic process that utilizes recreation and other activity-based interventions to address the assessed needs of individuals with illnesses and/or disabling conditions, as a means to psychological and physical health, recovery and well-being.” – American Therapeutic Recreation Association

Examples of Recreational Therapy: Animal Therapy, Athletics/Outdoor Recreation, Hippotherapy (horseback riding), Horticultural Therapy, Visual and Performing Arts. For a listing of day programs and camps that incorporate recreational therapy, explore the Social Programming/Activities tabs below.

West Michigan Providers

Life Therapeutic Solutions Wyoming

Hippotherapy

Cheff Therapeutic Riding Center Augusta

Legacy Stables & Karin’s Horse Connection Caledonia

Renew Therapeutic Riding Center Holland
Speech Therapy
Defined

“Speech therapy is the assessment and treatment of communication problems and speech disorders.” – Healthline

Learn more about the relationship between Speech Therapy and Down syndrome at NDSS.org.

West Michigan Providers

BRAINS Grand Rapids

Bronson Outpatient Rehabilitation Services Kalamazoo, Battle Creek, Paw Paw, South Haven

Building Blocks Therapy Services Grand Rapids

Calvin University Speech and Hearing Clinic Grand Rapids

Comprehensive Therapy Center Grand Rapids

Duncan Lake Speech Therapy, LLC Caledonia

Family Tree Therapies Grand Rapids, Rockford

Generation Care Grand Haven, Grand Rapids, Muskegon

Grand Haven Speech Partners Grand Haven

High 5 Speech Therapy Holland, Grand Rapids

Horizons Developmental Resource Center Caledonia

Mitten Speech Therapy Grandville

South Shore Speech, LLC Battle Creek

The Center for Childhood Development Jenison, Holland, Kalamazoo

The Shoreline Center, LLC Grand Haven

Thrive Pediatric Speech & Feeding Therapy, LLC Grand Rapids

Western Michigan University Speech Therapy Clinic Kalamazoo
Multidisciplinary Therapy
Multidisciplinary providers have experience and professional training to practice a variety of therapies.

West Michigan Providers

BRAINS Grand Rapids

Bronson Outpatient Rehabilitation Services Kalamazoo, Battle Creek, Paw Paw, South Haven

Comprehensive Therapy Center Grand Rapids

Conductive Learning Center Grand Rapids

Family Tree Therapies Grand Rapids, Rockford

Generation Care Grand Haven, Grand Rapids, Muskegon

High 5 Speech Therapy Holland, Grand Rapids

Horizons Developmental Resource Center Caledonia

The Center for Childhood Development Jenison, Holland, Kalamazoo

The Shoreline Center, LLC Grand Haven

Thrive Pediatric Speech & Feeding Therapy, LLC Grand Rapids

Social Programming / Activities

Arts
Artists Creating Together Grand Rapids

Grand Rapids Ballet Explorer Dance Grand Rapids (ages 10-19)

The Habitat Performing Arts Center Adaptive Dance Kalamazoo
Athletics
All Starz Bowling League Grand Rapids, hosted at Eastbrook Lanes, contact: League Coordinator Betty Goldman 616-644-4567 /sgbowl2000@yahoo.com

American Youth Soccer Organization (AYSO) VIP Program multiple locations

Kentwood Parks and Recreation Adaptive Recreation Kentwood

Special Olympics Michigan multiple locations

Southwest Michigan Miracle League Schoolcraft

TOPSoccer Kalamazoo

West Michigan Miracle League Rockford
Animals/Nature
Fellinlove Farm Holland

The Lemonade Farmhouse Allendale
Camps
Camp Sunshine Holland (ages 12-50)

IKUS (Indian Trails Camp) Grand Rapids

Skyline Camp and Retreat Center Birmingham (ages 13+)

CranHill Ranch Friendship Camp Rodney (ages 15+)

Pioneer Trails Day Camp Muskegon (ages 6-26)

Pine Ridge Bible Camp – Freddy’s Friends Cedar Springs (ages 14+)

Bloomfield SCAMP West Bloomfield (ages 3-26)

Clarkston SCAMP Clarkston (ages 3-40)

O.U.R. Camp Northville (ages 3-13)

Camp Grace Bentley Burtchville (ages 6-17)

St. Francis Camp Jerome (ages 8+)

Christian Reformed Conference Grounds Grand Haven (ages 5+)

Camp Roger Rockford (grades K-9)

Camp Geneva Holland (ages 6+)

Spring Hill Camp Ada, Evar

Camp Tall Turf Grand Rapids

Sidekicks West Michigan locations vary, provide day activities for individuals of all ages

Respite

Understanding Respite

Respite care provides the primary caregiver(s) with temporary relief from caregiving, while their loved one continues to receive care in a safe environment. Respite services can take place in your home or at day centers or overnight facilities.

Family Guide to Respite for Children in Michigan
Finding a Provider
ARCH National Respite Network maintains a directory of certified respite providers across the state. Use their directory to search for a provider in your area.

Network 180, the community mental health authority for Kent county, maintains a directory of contracted providers and their services, including respite.

ASK Family Services in Kalamazoo has a Family Care Coordination program that provides services to families of children with mental health or developmental challenges in Kalamazoo county, including identifying local providers.

Some parents have had success searching for providers on popular sites like care.com or by posting on college job boards. Students studying in areas including occupational therapy and special education are often searching for opportunities to gain experience working with individuals with special needs.
Annual Respite Events
Several annual respite events are hosted by organizations around the country for parents and families.

A Mother’s Rest provides weekend respite opportunities for parents and caregivers of children with physical and cognitive disabilities, foster/adoptive parents, special educators, spouses caring for injured or chronically ill husbands/wives, spouses of Wounded Warriors, as well as those caring for their own parents facing Alzheimer’s/Dementia and other age-related illnesses at home.

DSDN Rockin’ Mom & Dad Retreats are offered annually for parents of children with Down syndrome.

LuMIND IDSC Family Weekend is offered every September for families who have a child with Down syndrome to enjoy a fun-filled weekend at Great Wolf Lodge.

Medical

Communicating with Your Physician

Boston’s MassGeneral Hospital For Children created a Talking to the Doctor Workbook for individuals with Down syndrome that focuses on sharing feelings and asking questions. They also offer remote second opinions to patients and health care providers in the United States. Similarly, Children’s Hospital of Philadelphia offers a Toolkit for Transitioning to Adult Medical Care for individuals with Down syndrome.

LuMind IDSC has also launched the first-of-its-kind DSC2U, an “online toolkit that provides customized, expert-driven information for people with Down syndrome from age 1 through adulthood. Immediately upon completion of the form, caregivers receive two personalized documents: one for themselves and one to share with their primary healthcare provider. Both documents contain detailed, customized suggestions, follow-up questions, and conversation prompts that are designed to optimize time with a primary care provider and offer caregivers the vocabulary and tools they need to advocate for their loved one.”

For support when speaking with dental providers, take a look at the Dental Care Guidance for Caregivers of Patients with Down syndrome.
Finding a Provider

Looking for a medical provider? The Preferred Medical Provider List is maintained by Down Syndrome Head Start and lists doctors, dentists, and other providers recommended by Michigan families experiencing Down syndrome. **Please note that Down Syndrome Head Start’s website has been down as of November 2018. This list has not been updated since 2017. If you are looking for more up-to-date information, we recommend reaching out on the Michigan Parents of Children with Down Syndrome Facebook group.

The Family Center for Children and Youth with Special Health Care Needs (Family Center) is also a helpful resource for Michigan families. The Family Center is the statewide parent-directed center within Children’s Special Health Care Services (CSHCS) and the Michigan Department of Health and Human Services (MDHHS). It offers emotional support, information, and connections to community-based resources to families of children and youth with special health care needs, as well as provides parental perspectives and input on health care matters while focusing on families’ access to coordinated systems of care.

Looking for a dentist? The Special Care Dentistry Association (SCDA) is a unique international organization of oral health professionals and other individuals who are dedicated to promoting oral health and well-being for people with special needs. A list of Michigan dentists belonging to SCDA can be found on their site. The Michigan Parents group on Facebook is also a good resource for finding dental recommendations.
Paying for Your Child's Healthcare Expenses
Children’s Special Health Care Services (CSHCS) of Michigan provides low or no cost supplemental health insurance for a variety of covered medical diagnoses for individuals under 21 years old. While Down syndrome alone is not a qualifying diagnosis, CSHCS covers over 2,700 physical conditions of which many individuals with Down syndrome may experience at least one. A complete list of covered conditions can be viewed here. Find your county’s CSHCS branch

The Children with Special Needs Fund provides support for children ages 0-21 in Michigan with special health care needs not available through any other funding source. The Fund helps with the purchase of equipment and services that promote optimal health, mobility, and development, enhancing the lives of children and their families.

Financial

Local Assistance Programs
DSAWM Financial Assistance is available to members for expenses related to the following when relating to support, care, or treatment of person with Down syndrome: adoption, respite care, and educational, medical, therapeutic, and adaptive services or devices. DSAWM members are also eligible for our Meal Voucher Program which offsets meal expenses for families whose child with Down syndrome is experiencing an overnight stay in the hospital.

Family Hope Foundation offers scholarships of up to $1,000 twice a year to West Michigan families for therapies that have little or no insurance coverage

Lori’s Voice provides funding for equipment, educational resources, or expenses related to medical treatment for individuals up to 21 years old who have neurological, muscular, or other degenerative conditions resulting in permanent impairment or mobility issues

In need of immediate assistance? Contact 2-1-1. Michigan 2-1-1 is available 24/7 via phone, text, or online search to connect callers with local community-based organizations across the state that provide support and assistance to those in need.
National Assistance Programs
AMBUCS provides AmTrykes, therapeutic tricycles for children and adults with disabilities, including children with low muscle tone

Apraxia Kids provides speech tablets and protective cases to children with a diagnosis of apraxia of speech to aid in communication

Cerner Charitable Foundation provides financial assistance for medical care, medical devices, vehicle modification, and travel for those 18 and younger with a disability

Different Needz Foundation provides grants for medical equipment and/or services, including developmental therapies

Friendship Circle’s Great Bike Giveaway provides an opportunity for children and teens to win an adaptive bike as well as provides a fundraising platform to purchase a bike at a discounted price

LifeLine Pilots provides free medical and compassion flights to patients in the Midwest with financial need

Maggie Welby Foundation provides scholarships to children in kindergarten thru 12th grade whose families demonstrate financial need

McLindon Family Foundation provides adaptive bicycles for children with special needs

Microsoft provides scholarships to promising high school seniors with disabilities who plan to attend a vocational or academic college and target a career in the technology industry

Modest Needs provides short-term financial help for families in crisis situations

Montana Melin Foundation provides financial assistance to the families of children with Down Syndrome that are facing medical hardships

My Gym Foundation provides grants for the purchase of medical and therapy equipment for children with special needs under 18 years old

NDSS provides scholarships to individuals with Down syndrome in the areas of post-secondary education, entrepreneurship, and self-advocacy

Needy Meds provides discounted and free medication programs and other services for low income families

Parker Lee Project provides medical supplies and equipment to children at no cost, including enteral supplies, formula, and incontinence supplies

Project Angel Fares grants all-expenses-paid trips to children with special needs to visit Morgan’s Wonderland – an ultra-accessible theme park in Texas

Ruby’s Rainbow provides scholarships to individuals with Down syndrome who are pursuing post-secondary education, enrichment, or vocational classes

Small Steps in Speech grants funds for speech and language disorder therapies for people aged 3-22 years old

Special Kids Photography of America provides grants for family pictures

Stepping Stones for Stella provides buggies for children with special needs to enjoy outdoors to its fullest

UnitedHealthcare Children’s Foundation offers grants for kids 16 years old or younger for services health insurance does not cover

Wheelchairs 4 Kids provides wheelchairs, home and vehicle modifications, as well as other assistive and therapeutic devices for children that have limited mobility

Wings of Mercy provides free medical flights to patients in eastern Michigan with financial need

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