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National and International Agencies

Adoption Awareness Program - DS Assoc of Greater Cincinnati (1-800-796-5504) Provides connections to families who are interested in adopting a child with Down syndrome

American Hippotherapy Association (1-888-851-4592) Promotes hippotherapy through the professional growth of physical, occupational and speech-language therapists interested in using the movement of the horse as a tool in treatment

The Arc of the United States (1-800-433-5255) National organization of and for people with mental retardation and related disabilities and their families

Arc Legislative Action Center Provides guide to federal, state and local elective officials; also publishes list of action alerts, important issues, recent votes, current legislation and more

Association of University Centers on Disabilities (AUCD) (301-588-8252) Network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families and communities

Best Buddies (1-800-892-8339) Creates opportunities for one-to-one friendships, leadership development and integrated employment for individuals with intellectual and developmental disabilities

Brookes Publishing (1800-638-3775) Publisher of books, tools and other resources for professionals who work with children with developmental disabilities and their families

The Consortium for Citizens with Disabilities (202-783-2229) Coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society

Council for Exceptional Children (CEC) (1-888-232-7733) Dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities and the gifted

Council for Jews with Special Needs (680-629-5343) Nonprofit human resources agency composed of concerned individuals working together to ensure that all Jews have the opportunity to fully participate in the richness of Jewish religious, cultural and social life

Council of Parent Attorneys and Advocates (410-372-0208) Nonprofit organization of attorneys, advocates and parents established to improve the quality and quantity of legal assistance for parents of children with disabilities

Disability Solutions (503-244-7662) Free bi-monthly newsletter for families and others interested in Down syndrome and related disabilities

e-Buddies® (202-554-4801) Creates e-mail friendships between people with and without intellectual and developmental disabilities

Facilitated Communication Institute (315-443-9657) Provides research, training and public education on FC, which is an alternative means of expression for people who cannot speak or whose speech is highly limited (echoed, limited to one or a few word utterances) and who cannot point reliably

Family & Advocates Partnership in Education (FAPE) (1-888-248-0822) Links families, advocates and self-advocates to information about the Individuals with Disabilities Education Act (IDEA) in order to address information needs of families whose children with disabilities receive special education services

Federal Interagency Coordinating Council Established to describe the government's efforts to assist infants and preschool children with disabilities and their families

Great Lakes ADA & IT Center (1-800-949-4232) Provides technical assistance and training to businesses and people with disabilities, in Illinois, Indiana, Ohio, Michigan, Minnesota and Wisconsin, regarding the Americans with Disabilities Act of 1990 (ADA)

Home Watch Caregivers (1-800-777-9770) Provides quality in-home care for individuals with special needs

IDEA Practices Answers questions about Individuals with Disabilities Education Act (IDEA), provides information about IDEAs That Work and supports efforts to help ALL children learn, progress and realize their dreams

Internet Resources for Special Children Provides parents, educators, medical professionals and caregivers with information regarding children with disabilities

J. P. Das Developmental Disabilities Centre Provides resources on developmental disabilities research, inclusive education and abuse for parents and teachers

Joni and Friends (1-818-707-9707) Exists to communicate the gospel and equip Christ-honoring churches worldwide to evangelize and disciple people affected by disability

Justice For All (1-800-840-8844) Formed to defend and advance disability rights and programs in Congress

Kids As Self Advocates (KASA) (785-273-3398) Created by youth with disabilities, for youth to educate society about issues concerning youth with a wide spectrum of disabilities and special healthcare needs

MUMS (1-877-336-5333) National parent-to parent organization for parents or care providers of children with any disabilities, disorders, chromosomal abnormalities or health conditions

National Association for the Dually Diagnosed (1-800-331-5362) For persons with developmental disabilities and mental health needs

National Association of State Directors of Special Education, Inc. (703-519-3800) Promotes and supports education programs for students with disabilities in the United States and outlying areas

National Center on Secondary Education and Transition (NCSET) (612-624-2097) Coordinates national resources, offers technical assistance and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures

National Down Syndrome Congress (1-800-232-NDSC) For annual membership fee you can receive their newsletter, Down Syndrome News, which discusses a variety of topics; free information packet on Down syndrome available

National Down Syndrome Society (1-800-221-4602) Provides national leadership in education, research and advocacy in order to benefit individuals with Down syndrome and their families; variety of publications available, including their newsletter, Update

National Association for Down Syndrome (NADS) (630-325-9112) Support group in Chicago area; newsletter is available for $15 annual membership fee

National Center on Physical Activities and Disabilities (1-800-900-8086) Provides information and resources that can enable people with disabilities to become as physically active as they choose to be

National Dissemination Center for Children with Disabilities (NICHCY) (1-800-695-0285)National information and referral center providing information on disabilities and disability-related issues for families, educators and other professionals

National Rehabilitation Information Center (NARIC) ( 1-800-346-2742) Collects and disseminates results of federally-funded research projects

Office of Special Education and Rehabilitative Services (OSERS) (202-245-7468) Committed to improving results and outcomes for people with disabilities of all ages by providing a wide array of supports to parents and individuals, school districts and states in three main areas:  special education, vocational rehabilitation and research

Our Children Left Behind (OCLB) Information resource area for students, parents and organizations concerned about Congressional activities

Parent Advocacy Coalition for Educational Rights (PACER) (952-838-9000) Provides assistance to individual families, workshops, materials for parents and professionals and leadership in securing a free and appropriate public education for all children

Parents As Teachers National Center Information on programs for children birth to age 5 years

Presidential Task Force on Employment of Adults with Disabilities Provides one-stop online access to resources, services and information available throughout the federal government

Project Participate (303-315-2318) Provides families, educators, administrators and therapists with simple strategies to increase the active participation of students with disabilities in school programs.  Facilitates team collaboration and promotes the appropriate uses of technology in the classroom

Social Security Administration (1-800-772-1213) Your child may qualify for Supplemental Security Income (SSI); call for additional information

Special Needs Advocate for Parents (SNAP) (1-888-310-9889) Provides medical insurance problem solving, referrals to educational advocates and support groups, offers special needs estate planning through seminars and consultations with experts in the field and has a directory of attorneys with expertise in special needs practice

Special Olympics Provides year-round sports training and athletic competition in variety of Olympic-type sports for individuals with disabilities

Specs 4 Us Produces "Erin's world", a line of of eyeglass frames designed specifically for children with Down syndrome

The Arc Link Offers an understanding of federal rules and regulations, helps with identifying resources that fit specific needs, allows searches for specific providers/resources by state, lists community-based resources and allows sharing and exchanging of information

Therapy Dogs International, Inc. (973-252-9800) Provides qualified handlers and their Therapy Dogs for visitations to institutions, facilities and any other place where Therapy Dogs are needed

U.S. Department of Justice (202-514-2000) Answers questions about Child Care Centers and the Americans with Disabilities Act (ADA)

U.S. House of Representatives (202-224-3121) Resourceful site providing information on latest bills being introduced, in addition to information on how to contact representatives

U.S. Senate (202-224-3121) Lists all U.S. Senators, activities on Senate floor and Committee Hearing schedules

Universal Health Care Action Network (UHCAN) (1-800-634-8422) National resource and strategic center supporting organizations and advocates working for comprehensive, affordable and publicly accountable health care for all in the U.S.

Waisman Center (608-263-5776, 608-263-1656, 608-263-5910) Works to advance knowledge about human development, developmental disabilities and neurodegenerative diseases through research, training, service and outreach

Woodbine House (1-800-843-7323) Publisher specializing in books about children with special needs; call to request free Special-Needs Collection Catalog

Wrights Law Provides accurate, reliable information about special education law, education law and advocacy for children with disabilities to parents, educators, advocates and attorneys

Yellow Pages for Kids with Disabilities Provides listings for educational consultants, advocates, advisors, psychologists, diagnosticians, health care specialists, academic tutors, speech-language therapists and attorneys.  Also provides information about government programs, grassroots organizations, disability organizations, legal and advocacy resources, special education schools and parent support groups

The Down Syndrome Association of West Michigan is an affiliate of:
National Down Syndrome CongressDown Syndrome Affiliates in Action