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Health and Medical

DS Healthcare Guidelines

Down Syndrome Growth Charts Growth charts for children with Down syndrome . If you would like to read more about growth charts as they relate to Down syndrome, you may want to check out Medical & Surgical Care for Children with Down Syndrome:  A Guide for Parents, Woodbine House, 1995.

Down Syndrome Health Care Guidelines (1999 Revision) Record Sheet - Sheet #1: Birth to Age 12 Years

Down Syndrome Health Care Guidelines (1999 Revision) Record Sheet  - Sheet #2:  13 Years to Adulthood

Healthcare Guidelines for Individuals with Down Syndrome Down Syndrome Quarterly, Volume 4, Number 3, 1999 .  Edited by William I. Cohen, M.D. for the Down Syndrome Medical Interest Group (DSMIG).  A must-have for all parents and the medical professionals who have patients with Down syndrome.

Health Care Guidelines from American Academy of Pediatrics These guidelines are designed to assist the pediatrician in caring for the child with Down syndrome.

General Health

Adult & Teen Down Syndrome Center Contains papers regarding health issues for adolescents and adults with Down syndrome

CAM Approaches for Children With Down Syndrome CAM (Complimentary and Alternative Medicine) Approaches for Children with Down Syndrome is a website sponsored by the Children's Hospital and Health Center of San Diego that summarizes what is known about complimentary and alternative therapies for children with Down syndrome.   

Center for Motor Behavior & Pediatric Disabilities Conducts and disseminates basic scientific research to better understand the complexity of individuals with Down syndrome, cerebral palsy, and spina bifida and to utilize this knowledge to design and test innovative clinical services  

Down Syndrome: Health Issues Full of helpful articles regarding medically related topics related to Down syndrome. The site is authored by Len Leshin, M.D., F.A.A.P. who, in addition to offering general pediatric care, is a member of the Down Syndrome Medical Interest Group and is the father of a child with Down syndrome.

Down Syndrome Health Message Board 

Down Syndrome Research Foundation Formed in response to the need, expressed by parents and professionals, for detailed and research-based information for themselves and for the community at large

Genetics & Disabilities Diagnostic Care Center Website of Lawrence G. Leichtman, MD, PhD, a Board Certified Pediatrician and Clinical Geneticist., who conducts consultations and seminars across the United States and is currently providing treatment and consultations for international patients.

Health Care for Adults with Down Syndrome

Health Topic Searches  Search engine for thousands of scholarly abstracts & articles from the U.S. National Library of Medicine of the National Institutes of Health. 

Promoting Health in Adults with Down Syndrome

Down Syndrome Clinics

Down Syndrome Clinics in the USA Compiled by Les Leshin, MD

Specific Medical Issues

Celiac Disease

Gastrointestinal

Heart

Nutrition

Obesity & Weight Management

Personal Hygiene & Fitness

 Sleep Apnea

Thyroid Issues

Dual Diagnosis – Down Syndrome and Autism

Diagnosis of Autism in Children With Down Syndrome The diagnosis of autism in children with Down syndrome is subjective and, therefore, difficult. This article addresses the symptoms of autism and issues faced when trying to obtain a valid diagnosis.

Down Syndrome and Autistic Spectrum Disorder by Joan E Guthrie Medlen.   Printed in Disability Solutions, September/October 1999

Down Syndrome and Autism Internet Information Center  Place for families and professional to discuss the unique, challenging, humorous, and sometimes tiring aspects of supporting a person who is dually diagnosed with Down syndrome and autism, autistic spectrum disorder, or PDD.   

Down Syndrome - Autism Yahoo Group Wonderful e-group for families who have children with DS and autism.  Joan Medlen is the moderator of this group. 

Disclaimer:  Many of these sites contain medical information.  Linking to such a site does not imply an endorsement of such medical advice.  Always consult your physician.

The Down Syndrome Association of West Michigan is an affiliate of:
National Down Syndrome CongressDown Syndrome Affiliates in Action