Health and Medical Resources

DS Healthcare Guidelines

Down Syndrome Growth Charts Growth charts for children with Down syndrome . If you would like to read more about growth charts as they relate to Down syndrome, you may want to check out Medical & Surgical Care for Children with Down Syndrome:  A Guide for Parents, Woodbine House, 1995.

Down Syndrome Health Care Guidelines (1999 Revision) Record Sheet - Sheet #1: Birth to Age 12 Years

 

Down Syndrome Health Care Guidelines (1999 Revision) Record Sheet  - Sheet #2:  13 Years to Adulthood

 

Healthcare Guidelines for Individuals with Down Syndrome Down Syndrome Quarterly, Volume 4, Number 3, 1999 .  Edited by William I. Cohen, M.D. for the Down Syndrome Medical Interest Group (DSMIG).  A must-have for all parents and the medical professionals who have patients with Down syndrome.

Health Care Guidelines from American Academy of Pediatrics These guidelines are designed to assist the pediatrician in caring for the child with Down syndrome.

General Health

Adult & Teen Down Syndrome Center Contains papers regarding health issues for adolescents and adults with Down syndrome

CAM Approaches for Children With Down Syndrome CAM (Complimentary and Alternative Medicine) Approaches for Children with Down Syndrome is a website sponsored by the Children's Hospital and Health Center of San Diego that summarizes what is known about complimentary and alternative therapies for children with Down syndrome.   

Center for Motor Behavior & Pediatric Disabilities Conducts and disseminates basic scientific research to better understand the complexity of individuals with Down syndrome, cerebral palsy, and spina bifida and to utilize this knowledge to design and test innovative clinical services  

Down Syndrome: Health Issues Full of helpful articles regarding medically related topics related to Down syndrome. The site is authored by Len Leshin, M.D., F.A.A.P. who, in addition to offering general pediatric care, is a member of the Down Syndrome Medical Interest Group and is the father of a child with Down syndrome.

Down Syndrome Health Message Board 

 

Down Syndrome Research Foundation Formed in response to the need, expressed by parents and professionals, for detailed and research-based information for themselves and for the community at large

Genetics & Disabilities Diagnostic Care Center Website of Lawrence G. Leichtman, MD, PhD, a Board Certified Pediatrician and Clinical Geneticist., who conducts consultations and seminars across the United States and is currently providing treatment and consultations for international patients.

Health Care for Adults with Down Syndrome

 

Health Topic Searches  Search engine for thousands of scholarly abstracts & articles from the U.S. National Library of Medicine of the National Institutes of Health. 

 

Promoting Health in Adults with Down Syndrome

Down Syndrome Clinics

Down Syndrome Clinics in the USA Compiled by Les Leshin, MD

 

Specific Medical Issues

 

Celiac Disease

·         Celiac Disease Foundation

·         Mayo Clinic – Celiac Disease  

 

Gastrointestinal

·         American Pediatric Surgical Association, Gastroesophageal Reflux   

·         American Pediatric Surgical Association, Hirschsprung’s Disease

·         Feeding Issues and G-tubes Online Support  

·         Gastroesophageal Reflux in Children and Adolescents

·         Pull-thru Network   

 

Heart

·         Congenital Heart Information Network  

·         Down’s Heart Group Online Community  

·         Heartpoint

 

Nutrition

·         Down Syndrome and Nutrition

·         Nutrition for Persons with Intellectual/Developmental Disabilities

 

Obesity & Weight Management

·         Looking at Metabolism

·         Weight Management in Down Syndrome Series of three articles promoting sound weight management and food-related habits

 

Personal Hygiene & Fitness

·         Dental Care for the Patient with Down Syndrome

·         Developmental Disability and Fitness

·         Down Syndrome and Exercise

·         What is Known About Physical Fitness and Down Syndrome

·         Yoga for Individuals with Disabilities

 

Sleep Apnea

·         Cincinnati’s Children’s Hospital

·         Sleep Disorders Guide

 

Thyroid Issues

·         The Thyroid & Down Syndrome

 

Dual Diagnosis – Down Syndrome and Autism

 

Diagnosis of Autism in Children With Down Syndrome The diagnosis of autism in children with Down syndrome is subjective and, therefore, difficult. This article addresses the symptoms of autism and issues faced when trying to obtain a valid diagnosis.

Down Syndrome and Autistic Spectrum Disorder by Joan E Guthrie Medlen.   Printed in Disability Solutions, September/October 1999

Down Syndrome and Autism Internet Information Center  Place for families and professional to discuss the unique, challenging, humorous, and sometimes tiring aspects of supporting a person who is dually diagnosed with Down syndrome and autism, autistic spectrum disorder, or PDD.   

Down Syndrome - Autism Yahoo Group Wonderful e-group for families who have children with DS and autism.  Joan Medlen is the moderator of this group. 

Disclaimer:  Many of these sites contain medical information.  Linking to such a site does not imply an endorsement of such medical advice.  Always consult your physician.