Down Syndrome Organizations

National

National Down Syndrome Congress (1-800-232-6372) It is the mission of the National Down Syndrome Congress to be the national advocacy organization for Down syndrome and to provide leadership in all areas of concern related to persons with Down syndrome.

National Down Syndrome Society (1-800-221-4602) NDSS was established in 1979 to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Since that time, this not-for-profit organization has become the largest non-governmental supporter of Down syndrome research in the United States. NDSS works every day to increase public awareness about Down syndrome and discover its underlying causes through research, education and advocacy.

International

Asian Parent of Children with Down Syndrome – Global Connection On-line support group for Asian parents of children with Down syndrome. 

Best Buddies (1-800-892-8339) The mission of Best Buddies is to enhance the lives of people with mental retardation by providing opportunities for one-to-one friendships and integrated employment.

Down Syndrome Educational Trust  (+44 23 9285 5330) The Down Syndrome Educational Trust is a charity, based in the United Kingdom, that works to advance the development and education of individuals with Down syndrome. Great resources on reading, writing, speech development and more.

Down Syndrome Information Network The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, careers, professionals and researchers.

Down Syndrome Research Foundation & Resource Center (604-444-3773) Located in Vancouver, BC, the Down Syndrome Research Foundation & Resource Center is dedicated to improving life for people with Down syndrome through research, education and services.

e-Buddies® (202-554-4801) e-Buddies® creates e-mail friendships between people with and without the developmental disability of mental retardation.

International Mosaic Down Syndrome Association (1-888-637-5465) The International Mosaic Down Syndrome Association provides support and resources for families of individuals with Mosaic Down syndrome.

National Parent Support Groups

Adoption Awareness Program  - Down Syndrome Association of Greater Cincinnati Provides connections to families who are interested in adopting a child with Down syndrome with agencies who have custody of a child with Down syndrome or birth families who are looking at adoption as a choice.

Colorado Springs Down Syndrome Association (CSDSA) (719-633-1133) The Colorado Springs Down Syndrome Association is a volunteer group of families who have children with Down syndrome, as well as people interested in helping in their endeavor to inform and remain updated on Down syndrome.

Down Syndrome Aim High Resource Center (DSAHRC) (518-438-1113) The Down Syndrome Aim High Resource Center provides parent-to-parent and professional services and support to individuals with Down syndrome and their families.

Down Syndrome Association of Greater Cincinnati (DSAGC) (1-888-796-5504) The mission of the Down Syndrome Association of Greater Cincinnati is to provide information, resources and support to individuals with Down syndrome, their families and their communities

Down Syndrome Association of Los Angeles (DSALA) (818-242-7871) The mission of the Down Syndrome Association of Los Angeles is to enhance the welfare of people with Down syndrome and their families through the development and promotion of education, and to increase public awareness, understanding and acceptance of Down syndrome.

Down Syndrome Association of Memphis and the Mid-South (DSAM) (901-547-7588) The mission of the Down Syndrome Association of Memphis and the Mid-South is to provide support to persons with Down syndrome and their families through networking, promotion of positive public awareness, information sharing and advocacy.

Down Syndrome Association of Northeast Indiana (DSANI) (260-471-9964) The mission of the Down Syndrome Association of Northeast Indiana is to enhance the lives of people affected by Down syndrome, provide information and support to families and professionals and promote awareness and acceptance of individuals with Down syndrome within our community.

Down Syndrome Association of Orange County (DSAOC) (714-540-5794) The mission of the Down Syndrome Association of Orange County is to enhance the quality of life for people with Down syndrome and their families through educational, social and support programs, and to promote Down syndrome awareness and acceptance in Orange County.

Down Syndrome Guild of Greater Kansas City (KCDSG) (913-384-48484) The goals of the Down Syndrome Guild of Kansas City are to provide support and resources, encourage active participation in the community, foster positive attitudes and help individuals with Down syndrome reach their full potential.

Down Syndrome of Louisville, Inc. (DSL) (502-495-5088) The mission of Down Syndrome of Louisville, Inc. is to improve the lives of persons with Down syndrome and their families by providing support, information and education and advocating for their rights and concerns.

Indiana Down Syndrome Foundation (317-925-7617) The mission of Down Syndrome Indiana is to serve as a conduit of information, support and advocacy for individuals with Down syndrome and their families, which promotes growth and inclusion in the community.

Mile High Down Syndrome Association (MHDSA) (303-797-1699) The mission of the Mile High Down Syndrome Association is to assure inclusion and enhance independence of people with Down syndrome by providing education, resources and support in partnership with individuals, families, professionals and communities.

National Association for Down Syndrome (NADS) (1-800-221-4602) National Association for Down Syndrome, a not-for-profit organization, was founded in Chicago in 1961 by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome.