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For Medical Professionals

The medical outreach program's aim is to educate physicians, nurses, genetic counselors and other health care professionals on the clinical and developmental needs of people with Down syndrome while expanding their understanding of the unique contributions and capabilities of people with Down syndrome.

The Down Syndrome Association of West Michigan (DSAWM) provides information to pediatricians, obstetricians, nurses, social workers, genetic counselors, and any healthcare provider seeking information on Down syndrome. Over 20 area hospital departments provide our information to their patients who receive a prenatal diagnosis or deliver a baby with Down syndrome. In addition presentations and newsletters offer additional up-to-date information.

Resources include:

Educational Material

Healthcare Guidelines

The Pediatric and Adolescent & Adult Healthcare Packet provides information that physicians can place in their patient’s medical file and refer to as they attend to the medical, developmental and social needs of their patient with Down syndrome. 

Pediatric Healthcare Packet (Birth to Age 12)

Adolescent & Adult Healthcare Packet (Age 12 & Up)


Guide for New and Expectant Parents

The Guide for New and Expectant Parents, available in both English and Spanish, is available to hospital social workers, birthing centers, special care nurseries, perinatal care programs, and geneticists for distribution to expectant or new parents. Additionally, it is provided to Early On agencies in West Michigan. The Guide provides an introduction to Down syndrome for new parents. Sensitive, yet informative, this guide includes information on medical concerns in newborns, early intervention services,breast feeding concerns and an invitation to connect with the DSAWM and other new families who can provide support.

If you would like bound copies of the Guide to distribute to a parent, please contact the Association at admin@dsawm.org.

The Guide is divided into six sections. Each section can be downloaded in it's entirety.

Section 1 - Your Beautiful Baby
Section 2 - Facts About Down Syndrome
Section 3 - Infant Development & Early Intervention 

Section 4 - Health, Medical & Benefit Information
Section 5 - Advocacy, Your Family & Friends
Section 6 - Resource Guide & Recommended Reading Lists

 Guide for Parents of Teens and Young Adults

The Guide for Parents of Teens & Young Adults is available for member of the Association to assist families in helping their child with Down syndrome mature through puberty, become aware of adult health matters and make the transition from the non-school setting to a more independent lifestyle. 

If you would like bound copies of the Guide to distribute to a parent, please contact the Association at admin@dsawm.org.

The Guide has been divided into five sections plus an Appendix.  Each section can be downloaded in its entirety.

Section 1 – Health & Medical Issues
Section 2 – Transition & Life Planning
Section 3 – Self-Advocacy & Self-Determination

Section 4 – Benefit & Guardianship
Information
Section 5 – Advocacy, Family & Friends
Appendix 1 - Adult Reference Materials

Delivering a Ds Diagnosis - Interactive Tutorial 

Delivering a diagnosis of Down syndrome, either pre- or post-natally, can be very challenging for any physician.  An interactive tutorial has been developed to provide physicians with current knowledge about Ds, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome.  Click here to view the video tutorial.

DSA Press

The DSA Press shares current information on a variety of topics relating to Down syndrome. These topics include medical, educational, and a “page for all stages”. The newsletter also publicizes the meetings and events sponsored by the DSAWM. Download the latest DSA Press or browse the archives

Lending Library

Our resource library contains many books in our health, nutrition, and medical collections which can assist healthcare professionals. Books can be shipped free of charge to your home or office. Visit our Lending Library and check out a title today.

Ds Resources

The Association has assembled a repository of resources that provide information about and support persons with Down syndrome. The links include a wide array of information designed to help anyone interested in learning more about Down syndrome  and are organized as follows:

Down Syndrome Organizations

Health and Medical

Michigan Agencies

National and International Agencies

National and Web-based

Publishers

West Michigan Resources 

DSA Press

The DSA Press shares current information on a variety of topics relating to Down syndrome. These topics include medical, educational, and a “page for all stages”. The newsletter also publicizes the meetings and events sponsored by the DSAWM. Download the latest DSA Press or browse the archives

Lending Library

Our resource library contains many books in our health, nutrition, and medical collections which can assist healthcare professionals. Books can be shipped free of charge to your home or office. Visit our Lending Library and check out a title today.

Ds Resources

The Association has assembled a repository of resources that provide information about and support persons with Down syndrome. The links include a wide array of information designed to help anyone interested in learning more about Down syndrome  and are organized as follows:

Down Syndrome Organizations

Health and Medical

Michigan Agencies

National and International Agencies

National and Web-based

Publishers

West Michigan Resources 

The Down Syndrome Association of West Michigan is an affiliate of:
National Down Syndrome CongressDown Syndrome Affiliates in Action