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Links
Advocacy & Support Organizations
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The
Arc - The national
organization of and for people with mental retardation and related
disabilities and their families.
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The
Arc Michigan - The
Arc Michigan exists to empower local chapters of The Arc to assure that
citizens with developmental disabilities are valued and that they and
their families can participate fully in and contribute to the life of
their community.
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Citizens
Alliance to Uphold Special Education
- (CAUSE) Provides Special Education Information and advocacy.
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Down
Syndrome Parent Network - (DSPN)
is an organization whose goal is to provide accurate, up-to-date
information on Down syndrome to parents, family, the general
public, and professionals. We attempt to replace the frequent myths and
misconceptions with solid facts. We promote the concerns of
inclusion in our communities, address social policy issues and
conditions that limit the full potential of the individual with Down
syndrome; and encourage research related to Down syndrome.
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Down
Syndrome Association
of Greater Cincinnati - (DSAGC)
The mission of the Down
Syndrome Association of Greater Cincinnati is to provide information,
resources and support to individuals with Down syndrome, their families,
and their communities. They also have an;
Adoption
Awareness Program
Which
provides connections to families who are interested in adopting a child
with agencies who have custody of a child with Down syndrome or birth
families who are looking at adoption as a choice. If you are interested
in adopting a child or considering adoption as an alternative,
please
call Robin Steele at 513.761.5400 or by email.
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Down
Syndrome Association of Northeast Indiana (DSANI) - To
enhance the lives of people affected by Down syndrome, provide
information and support to families and professionals, and promote
awareness and acceptance of individuals with Down syndrome within our
community.
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Family
Friendly Fun
- Our mission is to: enable families with special needs to share with
each other their experiences, information and inspirations via our newsletter
and new eGroup
forum; offer information on a variety of family friendly fun and helpful
topics; and provide
access to rings
and a link portal
to over 10,000 categorized websites relevant to special needs families.
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| From
Emotions to Advocacy (FETAWEB) The
Michigan Yellow Pages for Kids with Disabilities was designed so
people who love and work with our children can get reliable
information, support and connect with one another. You will
find different kinds of resources on this page - government
programs, grassroots organizations, and support
groups. |
| Internet
Resources for Special Children
is
dedicated to children with disabilities and other health related
disorders. The site provides valuable information for parents,
family members, caregivers, friends, educators and medical
professionals who provide services and support. Features include
On-line Communities - a place where users can ask questions or
connect with other people who may have the same questions,
thoughts, and/or experiences.
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National
Association for Down Syndrome -
National Association for Down Syndrome (NADS), a not-for-profit
organization, was founded in Chicago in 1961 by parents of children with
Down syndrome who felt a need to create a better environment and bring
about understanding and acceptance of people with Down syndrome.
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National
Down Syndrome Congress - It is
the mission of the National Down Syndrome Congress to be the national
advocacy organization for Down syndrome and to provide leadership in all
areas of concern related to persons with Down syndrome.
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National
Down Syndrome Society - NDSS
was established in 1979 to ensure that all people with Down syndrome
have the opportunity to achieve their full potential in community life.
Since that time, this not-for-profit organization has become the largest
non-governmental supporter of Down syndrome research in the United
States. NDSS works every day to increase public awareness about Down
syndrome and discover its underlying causes through research, education
and advocacy.
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National
Information Center for Children and Youth with Disabilities
- NICHCY is the national information and referral center that provides
information on disabilities and disability-related issues for families,
educators, and other professionals.
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Special
needs family fun
- offers family fun and special
needs resources to enhance the fun and quality of family life for
families with disabilities.
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United Way
- Please
make the Down Syndrome Association of West Michigan, Kent County the designated charity on your
United Way
pledge form.
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| Wrights
Law -
Parents, advocates, educators, and attorneys come to
Wrightslaw for accurate, up-to-date information about advocacy for
children with disabilities. You will find hundreds of articles,
cases, newsletters, and resources about special education law and
advocacy in the Advocacy
Libaries and Law
Libraries. |
Governmental & Education
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City
of Wyoming Student Services (Special Education)
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| www.iep4u.com
contains
over 4,000 free Goals and Objectives (IEP-ITP) each with
changeable bench-marks. This
information is designed to help you with the daunting task of
writing proper IEP’s. The IDEA Statements are spread out over
seven subjects (Domains) and four functional levels. Input key
words, phrases, or test names in the search engine to find just
the correct objectives for your student’s needs.
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| Project
Participate,
supported by the U.S. Department of Education, helps families,
educators, administrators and therapists increase the
participation of students with disabilities in school
programs. This site contains success stories, inclusion
strategies, adapted curricula, training handouts, and intervention
planning forms. There is also a section on using technology to
promote inclusion of students with disabilities in schools and a
"gadgets and gizmos" section that contains products to
help children with disabilities participate in school and play
activities. Call 303.864.5277 or e-mail
info@projectparticipate.org for more information. |
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Social
Security Administration -
Your child may qualify for Supplemental Security Income (SSI).
Eligibility usually qualifies the child for Medicaid
which helps with health care costs.
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Resource Materials
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Disability
Solutions - Disability
Solutions is the free publication of The Enoch-Gelbard Foundation. It's
mission is: "To provide in a widely accessible manner, free of
charge, information that is useful, sensitive, and current to everyone
concerned with developmental disabilities: parents, families,
self-advocates, and professionals."
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Woodbine
House Publishing - Publishes,
The Special-Needs Collection, a series of almost 50 books on
disabilities and related topics, including ADD, autism, cerebral
palsy, Down syndrome, learning disabilities, spina bifida, early
intervention, inclusion, special education, and more.
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Down syndrome and autism
Developmental Resources & Therapeutic
Programs
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ABA Flashcards produces
CD-ROMs with color images that parents print as flash cards to
teach children with Down syndrome, learning disabilities and
developmental delays. |
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Innovative
Therapists International -
Offer information and services for Oral-Motor Speech Therapy for
individuals with Down syndrome.
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Kent
Special Riding Program - Kent
Special Riding
Program is a nonprofit organization
dedicated to providing high quality therapeutic and recreational
horseback riding instruction to physically, mentally, and emotionally
challenged individuals in Kent and surrounding counties. KSRP strives to
maximize the potential of all individuals involved in the program in a
safe and stimulating environment.
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Love and Learning - As
the parents of a child with Down Syndrome, we would like to share what
we have learned about teaching language and reading to toddlers with
special needs. Our website gives information on how we taught our
daughter to read as well as many letters from parents who have used our
materials. Also available at our website are articles concerning our
technique, including the latest article published in the "Down
Syndrome News and Update", a publication of the European Down
Syndrome Association. If your organization or members would like a free
presentation CD that discusses our technique, please email us your
postal address.
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Health Care
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Eastern
Pennsylvania Down Syndrome Center
- (EPDSC) provides comprehensive
medical evaluations of infants, children, adolescents and adults with
Down syndrome in a family centered model. The Center will also provide
consultative services, provide medical services locally for persons with
Down syndrome, and to serve as a community resource for families,
service agencies, practitioners, and the general public.
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Growth
Charts - Growth charts for
children with Down syndrome can be found in the journal Pediatrics (81)
1988. The charts on this website were adopted from these charts
using the method shown below. If you would like to read more about
growth charts as they relate to Down syndrome, you may want to check out
Medical & Surgical Care for Children with Down Syndrome, A Guide for
Parents, Woodbine House, 1995.
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Health
Care Guidelines from American Academy of Pediatrics.
These guidelines are designed to assist
the pediatrician in caring for the child in whom the diagnosis of Down
syndrome has been confirmed by karyotype.
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Dr.
Lawrence Leichtman -
Lawrence G. Leichtman, MD, PhD, is a Board Certified Pediatrician and
Clinical Geneticist. Dr. Leichtman conducts
consultations and seminars across the United States and is currently
providing treatment and consultations for international patients.
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Dr.
Len Leshin - He is a
pediatrician and father of a child with Down syndrome. This site
provides information and resources relating to health issues for
children with Down syndrome.
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| www.clanthompson.com
has up-to-date information on foods and drugs as well as
books and manufacturer’s lists for those who have been
diagnosed with Celiac
Disease.
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Disclaimer: Many of
these sites contain medical information. Linking to such a site
does not imply an endorsement of such medical advice. Always
consult your physician.
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